sacredchao (![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
sacredchao) wrote2017-01-23 07:12 pm
sacredchao) wrote2017-01-23 07:12 pm
Entry tags:
When the wheels fall off.
No, I haven't posted for a while. Just over a year ago, I gleefully moved into my new unit and looked forward to the next chapter of my life. It's not been the best chapter. To cut to the chase, my health has deteriorated to a ridiculous degree. Work has become a horrific struggle to the point where even cutting back to four days a week has been useless. I took three months of long service leave and badgered doctors and other health professionals, hoping to find and answer, and maybe recover some health with rest. Two weeks after restarting work, I crashed so hard that I came home, fell into bed and slept for more than 20 of the following 30 hours. I saw my GP last Friday and she has referred me to a rheumatologist using terms like "fibromalgia", which, now I'm looking for it, fits horribly well.
People have told me that this isn't the end of the world. And no, it's not fatal. But I'm squinting at my finances, trying to work out how not to lose my unit while living on the DSP. (which provides no allowance for mortgages, unlike rent - apparently it's ok to pay off other people's mortgages while on a pension, but not your own.) This unit was effectively going to be my quality of life insurance for when I was expecting to retire in 20-30 years time. Now...this is going to require some epic juggling, and that in turn will require more juggling, just to find the personal resources to do the epic juggling. Walking more than a couple of hundred metres destroys me. I weigh nearly 120kg - 70kg me from 4-5 years ago would be beyond horrified. I am now morbidly obese, transfeminine, essentially disabled, middle aged and several flavours of queer. I am the living, complaining manifestation of the abject.
There are still good things in my life, but I am watching the latter half of my life dwindle to a tiny dessicated shadow of what I thought it might be. Having had the barest sniff of almost living in a body that fits me, that body has broken in several important ways. It's like opening a Christmas present only to find that someone has trodden on the exquisitely delicate contents before you got to them.
If you need me, just follow the sound of swearing.
People have told me that this isn't the end of the world. And no, it's not fatal. But I'm squinting at my finances, trying to work out how not to lose my unit while living on the DSP. (which provides no allowance for mortgages, unlike rent - apparently it's ok to pay off other people's mortgages while on a pension, but not your own.) This unit was effectively going to be my quality of life insurance for when I was expecting to retire in 20-30 years time. Now...this is going to require some epic juggling, and that in turn will require more juggling, just to find the personal resources to do the epic juggling. Walking more than a couple of hundred metres destroys me. I weigh nearly 120kg - 70kg me from 4-5 years ago would be beyond horrified. I am now morbidly obese, transfeminine, essentially disabled, middle aged and several flavours of queer. I am the living, complaining manifestation of the abject.
There are still good things in my life, but I am watching the latter half of my life dwindle to a tiny dessicated shadow of what I thought it might be. Having had the barest sniff of almost living in a body that fits me, that body has broken in several important ways. It's like opening a Christmas present only to find that someone has trodden on the exquisitely delicate contents before you got to them.
If you need me, just follow the sound of swearing.